There is often aching heaviness, sausagey toes, sore/redness behind the knee and the list goes on.
On a day to day basis lymphoedema can be very tiring.
Everyday I’m thinking, I have to massage 20 minutes a day, moisturise, can’t get sunburnt, wear my compression garment. At work and for my career, cant sit down too long, can’t stand up too long, its always on my mind.
I’ve been sooo annoyed while trying jeans on, finding appropriate clothing, buying shoes or pants and then not being able to fit in them when I’m having a ‘fat leg day’.
There have been times when I’ve been getting ready and ended up sitting on my bed in tears not wanting to go out with my friends anymore because I’ve had enough.
I’ve had shoes, compression garments, snowboard boots, pants, bridesmaids dresses, socks all adjusted to fit my leg.
Sure its gotten me in trouble before from lymphoeseals, blisters from new boots, too much partying, been bitten by insects, being in the sun too long. I had tendonitis after a concert once from standing on the concrete dancing all day, that one got me in a bit of trouble.
Despite all this I have been on stage dancing, backpacking, travelling, snowboarding, skydiving, hiking, wake boarding and my newest hobbie which I think is just perfect for lymphoedema….scuba diving
You can’t let Lymphoedema always run your life otherwise you may resent it even more.
